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ORIGINAL ARTICLE
Year : 2019  |  Volume : 10  |  Issue : 2  |  Page : 66-72

Stress and burden among parents of students in special schools of Mangaluru: A cross-sectional study


Department of Public Health, K S Hegde Medical Academy, Nitte (Deemed to be University), Mangalore, Karnataka, India

Correspondence Address:
Prof. Mackwin Kenwood D'Mello
Department of Public Health, K S Hegde Medical Academy, Nitte (Deemed to be University), Mangalore - 575 018, Karnataka
India
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/mjmsr.mjmsr_24_19

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Background: About 15% of the world's population lives with some form of disability; 2%–4% experience significant difficulties in functioning. Parents who are the primary caregivers of a child with a disability face numerous challenges in day-to-day life, which, in turn, affects their psychological health. Objectives: This study was conducted to determine the level of stress and burden among parents of a child with a disability, to identify the coping strategies used by the parents, and to assess the effect of sociodemographic variables on their level of stress and burden. Materials and Methods: This cross-sectional study was conducted in three special schools of Mangaluru taluk; a total of 112 parents whose children were enrolled in these special schools participated. Family Stress and Coping Interview and Zarit Burden Interview scale and a modified questionnaire on coping strategies were used to calculate the stress and burden level. Results: Nearly 47.33% of the parents reported mild-to-moderate stress, whereas 25% of the parents reported high stress, 50.9% of the parents reported mild-to-moderate burden, and 26.8% accounted for moderate-to-severe burden. There was a significant association between the level of stress, level of caregiver burden, and sociodemographic variables such as residents, occupation, education, and rehabilitation services. There is moderate and strong evidence of a positive correlation between the caregiver burden with the age of the child (r = 0.245, P = 0.009) and stress (r = 0.45, P < 0.001). The parents of children with disability undergo stressful events throughout their life; the sociodemographic factors have significant association on the level of stress and burden. Conclusion: The various program measures such as adult day care, improvised home-care, and use of assistive equipment can be undertaken to reduce caregiver burden.


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